Saturday, June 25, 2011

There's no crying at Disney!

I wish I could say that was because of Camden, but it was me. I was missing Grace. We didnt get to take her to Disney. She would have loved it. Not that the girl didn't get to travel. She went more places in 2 years than a lot of people do in 20. She went to Houston, Dallas, San Antonio, Salt Lake City, New York, Seattle, and San Diego. We were determined for her to experience as much as she could. And she did. Except Disney. Hopefully she was there with us today.
It probably didn't help that we went to another grief session today. It was good, it's just always tough. Met some more families. Keven went back in the afternoon for the last grief session. I forced Camden to nap. So glad I did! :)
I guess Grace was watching out for us. It started raining right after the last session ended. Right when it was about time to head to Disney. But by the time we got done talking to people, waiting for the bus and riding over there it stopped raining. Timing was practically perfect. I like to think Grace and the other SMA Angels had something to do with that. Wanted all the kids and families enjoy their evening :) But we walked in and a Grace wave hit me. It didn't help that we were watching Mickeys Dreams do come true musical thing. Singing all about love, keeping dreams in your heart alive, dreams do come true. Just added to the pain. I know how blessed we were/are. I know we had her with us longer than we were supposed to and a lot longer than a lot of other families. But it still sucks and hurts and is unfair!
Camden had a lot of fun. He met Mickey, Minnie and Buzz. He rode Buzz Lightyears ride, the race cars, the tea cups and Winnie the pooh. He did so well! He got scared a couple of times - when the mean witch came out in stage and when they were doing a night show and it was loud and dark. But he did well. As soon as we got off the bus at the hotel he said "that was fun! I saw Mickey and Minnie and buzz! I got to shoot burg. Mickeys castle was fun!". So I guess he enjoyed it ;). And yes, sorry to disappoint but it's Mickeys castle not Cinderellas. And Mickey and goofy and Donald and everyone lives there!
We ran into several families there. One we hadn't met before but I had to talk to them because their daughter reminded me so much of Grace. Strength wise. A lot of the same control and same size. She was cute. Her mom was very nice. I always feel badly though when I talk to other SMA parents and talk about Grace. I can only imagine what is going thru their head. I mean the stupid path I was sent down might someday be their path. I hope not but I am a reality of the disease. So I feel badly talking to them and the idea of children passing. I hope I don't upset them too much.
That was something interesting that came up in the grief. What do we say when we asked how many kids we have. This was a tricky one for me for awhile. Because a lot of times it makes the other person feel uncomfortable. Makes them sad or makes them feel sorry for me. But 2 things happened and it's not hard any more. One being that I got over how they felt. I'm not telling them to upset them. I'm not telling them for sympathy. I'm telling them because they asked an I do have a daughter. Now it doesn't always come up that she's passed. Just depends on how the conversation goes. The other thing being that one time when asked I said just Camden. And I felt so guilty about it for so long. Like I had betrayed her. So it's easy for me to say 2 kids!
Well this has been a very scattered post but all in all a good day. As long as there's no crying at Disney!

No comments: