11th birthday

Can't believe she'd be 11 tomorrow. Seems unreal. Seems like she was never even here. I know she was though. If nothing else, the heartache is too real to ignore. I sure do miss her. Really struggling this year. Not sure why.  Can't put my thoughts into words so just some ramblings...I love you Grace and miss you more than you'll ever know. 

My heart is so full…yet feels so empty

I have so much happiness…yet too much sadness

How does it love and break at the same time?

How do I get back that which I have lost?

I know I can’t.

I know you’re always here

I know you watch from above

I’m tired of being strong

Of walking around like nothing’s wrong

Can’t do it all the time

It isn’t fair. It isn’t right.

Yet I am too blessed to have a right to complain

So much to be thankful for

But it doesn’t replace you

Nothing ever could

There are no words, only heartache

Camden's first funeral

I have to share how impressed I have been today with Camden and his first funeral visitation. We've talked lots about death and Heaven, because that's where Grace is. So we decided to let him lead with what he was comfortable with at the viewing. He decided he wanted to see her. Afterwards he came and asked if I wanted to. I said no thanks. Does she look different? (Grace did). He said no. I reminded him it was just her body and her soul was in Heaven with Grace. He said he knew and that God gave her a new body. He did think it was odd she still had her glasses on. 

Afterwards we went to dinner and then headed to the hotel. As we were driving he asked me if it hurt to pull skin off. I though maybe be had a scab or something. I said little pieces of dead skin didn't hurt. I wasn't sure what he meant. So he changed the subject and we talked some about whether she would stay there tonight and tomorrow. I explained we would bury her tomorrow and of course then he wanted to know why we bury people. I told him i wasn't sure. I thought there were different reasons different people did it and I didn't know  for sure. and then he said he hoped it didn't hurt grandma. I was confused by now. I asked him if she had a sore on her. He said no. I was very confused. He asked if she still had her bones. Yes. Did she still have her blood? No. She must have a hole in her. What???? "I hope it didn't hurt when her soul left her body to go to Heaven". Oh! That's what all the tearing skin meant. I told him no.She didn't feel it.  What an amazing thought to have!! Then he asked if you need wings to get to Heaven. I told him I didn't think so. That I think Angels come and carry you to heaven and you get your wings when you get your new body. "That sounds cool!"

Such a smart, curious, sweet boy. Love him so much! 

Happy Heavenly Birthday Angel Grace

9 years ago today I officially started my most difficult, most rewarding, and most loved job ever. Motherhood.  Grace came into our lives after a week long stay at the hospital, 3 weeks early, at 7 pounds 11 ounces. She had the biggest cheeks anyone has ever seen!  She was perfect. All we had hoped and dreamed for.  I was broken into motherhood quickly as she was a colicky baby and Keven worked over nights. The next 2 years, 5 months and 2 weeks were the most wonderful, most difficult, most loved filled and most heartbreaking years ever. In between doctor appointments, therapies, medical trials, hospital stays and FSMA/MDA events she smiled, laughed, traveled the US and Graced the lives of everyone she met. 

From before we met her I knew I wanted to be a mom. And a mom several times over. 3 or 4 sounded perfect in my mind. Never dreamt making that dream come true would be such a long, bumpy, winding road. So after SMA we knew personally we had to try other routes. We were blessed through IVF with Camden. When we knew it was time again we decided adoption. We spent 2 years, and said YES to 10 different children. Time to try something different.  On to egg donor.  We had a successful transfer Fall 2012, only to miscarry at 6 weeks.  Winter 2013, failed transfer attempt number 2.

So here I am, 9 years to the day of starting this, my favorite job. Blessed to be mom to 2 of the most wonderful, beautiful children on Heaven and Earth. I am so thankful that Grace ushered me into this position. I am so happy to still be in this position, even though it's a bit empty without her here.  And although I never would have or could have imagined the last 9 years they way they were, and that motherhood would be such a wonderful and painful adventure, I wouldn't trade March 3, 2004 for ANYTHING! I love you Grace Dyan Coggin from now until forever. Happy 9th Birthday!                      

The more he grows...the more I miss her...

        I don't even know if that's possible. To miss her more. Hard to think it.  But it sure feels like it. As he gets older I miss her more and more.
         I miss that she didn't get to do all the things he's getting to do. I know she wouldn't have been able to do the exact same things, but her own versions of them.  She didn't get to go to school. Didn't get to play sports.  Go to Disney World. Go to Morgan's Wonderland. Pick out cool new furniture and wall hangings for her room.  She didn't get to meet all our new friends and her little cousins. I miss that I'm not learning how to do little girl's hair or buy her pretty Christmas dresses. Although if she were like me she probably wouldn't want to wear them anyways.
         I miss that when he's riding his bike she's not chasing him in her power chair. I miss that when he's playing baseball she's not cheering him on.  And that he doesn't get to cheer her on at what she chose to do.  At the park there is no sibling to run around and play with. There's nobody to tease and torment him like I did my little brother. No sister to have friends that he can have crushes on. She can't read him a bedtime story and help tuck him in. I know she wouldn't have wanted to do that every night, but I think they would have been close.  I wonder if he ever thinks of things like that. About the sister that isn't there...
        I miss that I teach students and am surrounded by those the same age as her and she should be in 3rd grade. First year of STAAR testing.  She was easy going, she probably wouldn't even care or worry about it. Which is the way I would want it. (Camden's a little more tightly wound, so it will probably be a different story). She should be coming to school with us. Enjoying class, friends, field trips and birthday parties.  We should be doing homework, science projects and performances.
        No, I don't really think I can miss her more than I already do. And I am thankful for the time with her. And thankful to have her dad and her brother. But sometimes that hole in my heart, that will never heal, feels so much bigger. Like it'll just swallow up my whole heart. That it hurts to breathe. And I miss her more...

Grace's Greetings

Thank you girl! I am getting your messages and hellos in the last week. Thank you for all of them! What are these signs?
In the last week I've gotten 2 calls and 1 email  from SMA people wanting to connect and more information. Don't think I've ever gotten 1 phone call. I know that's her reaching out to me.
Then several people asking how many kids I have and then wanting to more about Grace.
Someone noticing my Cure SMA purse and wanting to know all about that.
Got my butterfly scentsy warmer today, just in time for her birthday.
Then a show I've been putting off watching for almost a month, I decide to sit down and watch and the 1st song is Somewhere over the Rainbow, which we played at her funeral to send her balloons, and the couple is trying to adopt.
Man oh man...and that's just in the last 3 or 4 days.
I love you Grace! Keep the signs coming to me. I love getting them!!!

Take 2

See...already remembering things I've forgotten....
One of my favorite things - Camden kissing me on the nose to wake me up in the mornings :)
Another Camdenism - Keven to Camden - "You're mom's pretty!" ,  "No she's not, she's married!" :)

Belated New Year

Wow! 2 months! That's how long it's been since I wrote? That's awful. Considering I try to do this to keep memories...I really need to try harder. I tried to keep some notes to remember some funny/memorable things...

**We were at Wendy's talking about things and I don't remember how we got on the topic but I made some comment about being old and moving in with Camden and being a burden. His response - You're not a burden mom! Awe, made my heart melt. I know he doesn't know what that means, but it sounded so sweet and I should have gotten it in writing :)

**My sweet boy taking care of me. "Are you happy, sad or tired?" Me "yes"
"You're tired?" "yes" "you're sad?". "I'm always a little sad". "why?" Because part of my heart is missing. 

"why?".   Because Grace took it with her. "why?". She didn't mean to but she did. " Well I'll tell Grace to give

 it back.  She's up in Heaven with God so I'll tell her give your heart back". 

Boy I love that boy!!

***Camden answered my phone when Keven called. Afterwards I asked him if Keven's picture had popped up

 when it rang. He said no, Grace's did. I said ok (her pic is my background). Then he said maybe Grace was 

trying to call. I said ok. Then he laughed and said no, that's silly. Grace doesn't have a phone. :)

***Ben stayed with us one weekend in January. Those boys had so much fun! And Camden was amazing

 with Ben. He wanted to help him and protect him. He was just wonderful! 

***We talk a lot about Grace and Heaven and God.  He was complaining one day because he wanted to be

 in Heaven playing with Grace and with God and it wasn't fair! I told him someday he could but not yet. I 

wanted him hear with me.  He said maybe he could put stairs up to Heaven and see her. I asked if that's how

 he thought Grace got there - no, she went in her wheelchair. 

***Keven talks a lot about China and teaches Camden about it. Camden was looking at a clock with the 

Eiffel tower on it and was talking about it. Keven said it was made in China- that everything is made in 

China...Camden said No. We weren't made in China. God made us! He's so smart! 

***Talking about the Eiffel tower...we were downtown and there was a helicopter but then we couldn't see it

 any more. Camden asked why. Because it went behind the buildings. We can't see it when it's behind 

buildings. He said we could if it was the Eiffel tower - it has holes in it. He blows us away almost daily!

***I was telling Keven something about a "Big 'ol truck"  Camden said "A pickle truck?"  We couldn't stop

 laughing. A pickle truck! :)

***Bedtime is always a battle. Camden doesn't like to sleep. If people are awake he wants to be awake. So,

 it's a problem every night. We started a sticker chart to reward him for staying in his room all night. So one 

night soon after he was laying somewhere, he was calling for me and asked if I was in the living room - Keven

 said yes, but I shook my head. So he said no, she's not. Camden asked where I was. She went to take a 

bath. Keven asked him where he was. My feet are in my rooml. Where's the rest of you? In the hall, but at 


least my feet will get a sticker! LOL!

So, Camden is great and doing great and continues to amaze us daily! He started riding his bike this week and

 is very excited about 'squid' marks. 

We are trying to move forward on lots of things.  House, kids, life in general...We've been looking at houses, 

trying to decide on an adoption agency.  Time will tell. 

This Saturday will be Grace's 8th birthday. Hard to believe! Miss her so much and love her so much!!